PROJECTS
RESIDRAS
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National Registry of Dravet Syndrome and other SCN1A and PCDH19 Gene Mutation Related Syndromes
DAND
Creation and validation of an ad hoc scale for Dravet Syndrome
AWARD
In memory of Luca Ferrara and Mattia Riva, the award aims to enhance research and make known the Dravet Syndrome
NARRATIVE MEDICINE
Narrative Medicine, a clinical assistance methodology based on a specific communicative competence, represents a phenomenon with interesting sociological peculiarities.
KETO ITALY
Research Group born with the intention of promoting the knowledge of Diet Therapy
PLATFORM-RESIDRAS
International Registry of Dravet Syndrome and other Syndromes correlated with genes on SCN1A and PCDH19
SURVEYS
Given the importance of the data collected by the surveys, it is decided to actively participate in the dissemination and sponsorship of various surveys
EMERGENCY CERTIFICATE
Emergency Certificate aims to provide hospitals with a single protocol to be used in the event of an emergency in patients with Dravet Syndrome.
SADS
Record the sleep of Dravet syndrome patients for 7 days with an actigraphic recording device, based on a validated and certified algorithm
CREP
Increase research with the collection and analysis of clinical data and training of researchers with courses and meetings
DRAVET DIARY
The online diary for patients with Dravet syndrome
INCLUSION PROJECTS
Promote social integration and the sharing of training activities for the benefit of young people with cognitive disabilities
EJP RD
The European Joint Program on Rare Diseases is a European project on rare diseases
ANALYSIS OF THE PATH
International research group: Study and definition of gait patterns in subjects affected by Dravet Syndrome
Recognized as legal personality with provision of the Veneto Regional Council of 09.12.2015 n ° 815.
Agreement with the AOUI of Verona Prot. 1306 of 12/01/2021. Approved with Resolution no. 1392 of 12/30/2020
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