💚💗💙Lights and colors on rare diseases! 💚💗💙

On the occasion of the world day of #malattierare on Monday 22/02 and Sunday 28/02, the Verona Arena is lit up to raise awareness of the issue among citizens.

The patients affected in Italy are 500,000-600,000 and deserve the same attention and care.

The Dravet Italia Onlus, promoter of the initiative that involved the 6 ERNs from Verona, will participate in the RARE DISEASE WEEK, the week promoted by the European Commission to raise awareness among institutions on the issue and find common solutions.

For the rare disease day, all the ERNs related to the various rare diseases, which have a reference center at the Integrated University Hospital of Verona, were involved:

- ERN EpiCARE - Prof. Francesca Darra

- ERN MetabERN - Prof. Alessandro Simonati

- ERN Lung - Dr. Marco Cipolli

- ERN Bond - Prof. Davide Gatti

- ERN EuroBloodNet- Prof. Domenico Girelli

- Endo-ERN - Dr. Paolo Cavarzare and Prof. Franco Antoniazzi

Join the world day of rare diseases promoted by Dravet Italia Onlus:

ABC CHILDREN'S ASSOCIATION CRI DU CHAT
AIRETT - ITALIAN ASSOCIATION OF RETT'S SYNDROME
AISMME Italian Association for Inherited Metabolic Diseases APS

Syngap1 families Italy
Angelman Onlus Association
LGS Italy Families Association
Italian Association of Osteogenesis Imperfecta
ITALIAN ASSOCIATION MASTOCYTOSIS onlus (ASIMAS)
Association for Research on Rett Syndrome - ONLUS
Tuberous Sclerosis Association
CDKL5 Together towards the cure
European KCNQ2 Association
Cystic Fibrosis Research Foundation Onlus
Italian League of Cystic Fibrosis Veneto Odv
Together for research PCDH19 - Onlus
OR.SA Angelman Syndrome Organization
SCN2A Families Group
SCN8A Italy ODV
Sturge Weber Italy
Thadrev Onlus Thalassemia and Drepanocytosis Verona